19 December 2019

12.19 Another Day...

0600 in the cafeteria at Cedars-Sinai 
My fellow watchers and I were lined up at the door of the commissary again this morning waiting for coffee and breakfast. Starbucks opens at 0500 but I prefer the brewed institutional coffee here. I've been coming to this outlet everyday since 1 Novembre. Some mornings I'm the only one here at opening but this morning there was a crush of people.

I was up all night with my husband whose Ketamine dreams kept him awake. Twice he tried to get out of bed and nearly fell. I had to call for help just to pull him back onto the bed and reassure him that he was alright. Much of the night he thought he was either moving his car, so as not to get a ticket, or "doing" the laundry. Last night he baked cakes and cookies in his sleep. It distresses me that he is having these disruptions to his sleep and life in general. During the day we talk and watch television together or I work on paying his bills or answering emails and texts with him so he was no time for his mind to wander into the drug induced delirium but of course at night when the lights are off there is no stimulus for his brain. Today there is an order to wean him from the Ketamine which is used as a powerful pain-killer; I hope this will lessen the disruptions for him.

We've been informed that it's nearly time for him to move to a transition rehab facility to prepare him for acute rehab down the road. The transition in whichever facility we go to will take four to six weeks at which time hopefully he will be ready for acute rehab to learn to walk with a prosthetic leg. I continue to be moved everyday by his will to live and I can't imagine the struggle he is going through now and will have to bare in the near future. 

Every day I am grateful for the love and support from our friends and family. Henry is a very special man who loves his friends deeply and he is aware of all the love he is getting in return. Once more I would love for you to send him videos of encouragement. 

Day 48

Be fierce and thrive...!



  1. You both are truly an inspiration and what a team you make! Sending you both love and healing vibes. Phlip, is he in a room where he can receive gifts? xoxo Jennifer

    1. Hi Jennifer! Yes we are finally in a room where he can receive gifts. Room 7002 in the North Tower of Cedars-Sinai. I don't know how much longer we will be here at CS as it is nearing time for him to begin PT now that surgery is over...at least until Christmas


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