31 January 2020

01.31—Day 90

It’s been 90 days since Henry had the accident at Sunset and Foothill. I can’t pass that intersection without a sense of dread and sadness. 

Henry is doing well with physical therapy and though there are bad days there are more good days. Visits from friends help a lot and afternoons after 1 and before 4:30 are a good time to visit. These visits lift his mood and he’s able to refocus the next day. We often pass the time after lunch watching Netflix binging on a series or enjoying a movie. 

Sometime in the next two weeks he will be moved to an acute rehab facility where he will prepare to return home. It’s going to be a long process but Henry will return to the full life he had and desires. 

Be fierce and thrive
—Ph/H

29 January 2020

01.29 Short Update—Day 88

Kindred Hospital dining roomThis week is going well. Henry’s PT includes standing for 70 seconds as well as arm exercises. The new stain on his leg causes new pain but he’s able to tolerate it and complete his PT. He also wheels through the halls of the hospital and we can sit outside in the sun. 

He was also fitted with a compression sock for his left leg to prepare it for the prosthetic lower leg. 

Most hospitals spend less than $6.50 per patient per day on raw food (i.e. before it is prepared). Here at Kindred I estimate that cost to be lower than $5.00 per day per patient. There may be some flux—higher and lower— but that seems to be the average cost. Much of the food is processed and I imagine frozen to reduce staff and time in the kitchen. This is not unusual across the American healthcare system. Some are much lower! 

Be fierce and thrive
—Philip

25 January 2020

01.25 Day 84

Yesterday we found out that our insurance will cover our preferred rehab center. Now Henry has to get in shape to withstand intensive physical therapy for more than three hours at a stretch. He spent a couple of hours in the wheelchair and wheeled about a tenth of a mile around the parking lot of the hospital; this strengthens his arms and builds endurance. In the afternoon his PT, Scott, had him up and standing several times for over a minute which is the longest time to date he’s been able to stand. His knee is painful but he needs fewer pain meds than a week ago to tolerate the strain. He still needs to be lifted and supported but he is standing! I wish I could show you video of his progress, he is amazing and so focused on getting well. Henry is an inspiration to me.

I am hopeful. We are beginning to see the distant end to his immediate suffering; I know it will take him many more long hours of therapy to understand and overcome his limitations.

This is a painful journey for both of us. I try not to anticipate the future anymore knowing that anything can happen and to try and be prepared is useless. The best I can do is to focus on the present and take care not to judge what has happened. To breathe and not judge.

Henry is fierce and thriving.

—Ph/H

22 January 2020

01.22 Afternoon Update

Today was a very good PT workout both in the bed with his legs and learning how to push and pull himself up and into the wheelchair. He powered through it and never complained. Scott and Michael then took him to the gym (he wheeled the chair: that’s the gym in the picture) and put him on the cycle to stretch and strengthen his right leg. This was very painful but once again he did it for about 20 minutes. After they stood him up and put him back into the chair. 

He sat in the chair during speech therapy and practiced various sounds and vowels for 30 minutes. He is sounding better and better but I think this is going to change his voice permanently. He always had a raspy voice but now it will have more rasp and vocal breaks. But he still sings to himself and me though and I love the sound of his voice... 

He is exhausted after these two hours and his legs are both on fire with muscle pain. We are determined to move to Acute Rehab in ten day or sooner so he knows there is a lot of work yet to do.

This is day 81
—Ph/H

20 January 2020

01.20 Day 79 Brief Update

I haven’t updated this site for a few days; over the weekend he was pretty out of sorts and not feeling his best. This passed today after a very productive but painful physical therapy session with Scott and Michael. Later, Minjy came in and gave him a little pep talk and explained that he would have to work hard and work through the pain.

No one can relate to the pain Henry is going through; all I know is whatever he is going through he has already gone through worse. That he survived the accident with all his injuries is amazing and a tribute to the doctors’ skill and his will to live.

Be fierce and thrive...

—Ph/H

16 January 2020

01.16 Day 75

I carry two cameras with me all the time. My mobile phone, of course, and my trusty Ricoh GRII that I carry every where in my pocket. It’s a great camera and out of the three cameras I own this is my personal favorite; I’ve made over ten thousand photographs with this camera. While I don’t publish photographs of Henry here in the hospital while he’s recovering, I do make a lot of images here and at Cedars that I use for documenting his care. The photographs you see on this site are for illustration.

To you who have written me about a book: yes I am writing a book about our journey. I started that journal on the day of the accident; I started updating my weblog with his status on 2 November. These are two different points of view and compliment each other each adding context to the other. As you can imagine both the weblog and the book are far from complete.

Today the therapists showed up early and had him dress in pajama pants and a sweat shirt (from The Beverly Hills Hotel). Then they showed him how to slide himself into the wheelchair. He then wheeled himself into the gym again where his PT helped him stand using the parallel bars. He was able to lift himself but needed help standing. He was able to stand for about three minutes before having to sit again in the chair. Once he gathered himself again he was able to stand twice more with help from the PTs. After this exercise Henry sat for about 30 minutes in the wheelchair while we visited with the staff. I was so proud of him. 

He’s beginning to become more independent and do things for  himself again. This is very rewarding for both of us as I become more of an onlooker and his cheerleader. 

Be fierce and thrive!

—Philip HOPBELL

15 January 2020

01.15 Henry’s Progress—Day 74

The last two days were very physical for Henry. Yesterday was a strenuous session sitting up and learning to use a dressing stick. He’s having to stretch and use his left arm and shoulder which were smashed in the accident and are now in the painful process of healing. At the end of the 30 minutes he was exhausted and somewhat frustrated.

Today after stretching out his leg muscles and shoulder he was able to roll over to the right and left side without help. Eventually he was able to sit up on the bed and dangle his legs over the edge. The therapist then transferred him to the wheelchair and allowed Henry to wheel himself down the hall and out the front door so he could sit in the sun and coolish air. While this seems a simple thing it is in fact a major accomplishment for someone who has been inside and flat on his back for 74 days and nights. After getting outside the PT stretched his leg again and then let him sit quietly outside where he and I spent some time talking and enjoying our time.

It is impossible to describe or even to imagine the pain, both physical and emotional, he is going through each hour everyday; the drugs don’t completely abate the sensation but he rarely displays despair. I am so proud of him.

Be fierce and thrive...

—Ph/H

13 January 2020

01.13 Day 72

Today PT started again and Scott, his therapist, sat Henry up on the edge of the bed again and put some weight on his right foot. Henry handled the exercise very well and sat up by himself for about 15 minutes. He had to sit himself up and he did it without asking for help, but it was a struggle. I’m so very proud of this man and his strong will.

After laying down again Scott worked on stretching his right leg muscles and ankle. After about 30 minutes he was exhausted. Tomorrow he will get in the wheelchair again and go to the gym. 

He also had speech therapy. The therapist told him to take time off talking as the strain was too much for now. He talked all weekend and needed a break.

This is exhausting for both of us, I won’t lie to you. I leave at the end of the day too tired for words and yet I have to work on writing and answering emails for another two or four hours depending on how much time I get during the day.

Be fierce and thrive...

—Philip


11 January 2020

01.11 Day 70

Not much of an update today. The weekends are very slow and without physical therapy. I did exercise his legs and massage his right leg to loosen the scar tissue. I also moisturized the skin on both legs.

The kitchen at Kindred Hospital had a fire this morning and they had to serve cold meals all day. I ordered fried catfish, hush puppies, and greens for him from Cafe Creole. The fish was good and the greens excellent. Earlier his friend Tim came and brought him 16 bottles of high protein drinks. His doctors want Henry to take in 90 grams of protein a day. The drinks provide more than enough protein since the hospital diet is short on high quality proteins.

Henry’s spirit is strong and he’s doing very well. Please keep sending him videos and messages as they give his morale a boost.

Be fierce and thrive...

—Ph/H

09 January 2020

01.09 Day 68

Today was a slow day after so much work yesterday: Henry experienced a lot of pain and didn’t get much sleep. Much of the pain I understand is nerve pain and is caused by the nerves growing back. But today he did sit up on the edge of the bed again and did some balance exercise. He also put some light weight on his right leg and foot which are very tender.

Tomorrow we go back to Cedars-Sinai for a check up with the plastic surgeon and perhaps meet with the Orthopedic doctors. We’ll travel by ambulance.

One of the doctors told him he needs to eat 90 grams of protein a day and so I’m looking for cases of Premier Protein drinks in Chocolate, Carmel, and Oreo flavors. I’m going to the Target that is local to the hospital.

Be fierce and thrive...

—Philip

08 January 2020

This Happened Today...

This happened today...I watched in awe as Henry was sat up and then transferred to a wheel chair. It was not without pain but after a short break sitting in the chair he wheeled himself the thirty yards or so to the PT gym. As he wheeled through the halls all the nurses and assistants yelled “Hi Henry” and applauded his effort. He was working hard but grinned at everyone and totally charmed them.

Once in the gym he tried to stand up using the parallel bars but the pain was too much to stand today. But he showed tremendous willingness to work through the pain. One of the PT said under his breath: That’s one tough cookie...of course yours truly cried with joy. As his reward we wheeled him outside to sit for ten minutes in the sun. 

What a great day!
Day 67
Be fierce and thrive!

—Ph/H

07 January 2020

01.07 Update

Kindred Hospital
Kindred Hospital
Here are the grounds in front of the Hospital. When Henry is ready I’ll be able to take him for a little sun. He sat up for the first time since Christmas Day but this time the PTs made him sit up on his own with very little help. He was able to sit straight up without support for five minutes and then lay back down on his back. I had tears in my eyes watching this man struggle then lift himself to sit upright...it was a great sight. Today he also exercised and strengthen the muscles in his left shoulder and arm. He’s getting stronger each day.

I also observed the wound-care nurse change the dressing on the wound on his left side and I couldn’t believe the improvement there; he is almost healed up completely and the wound is now superficial. At this rate it should be closed in two weeks. It’s impossible to say how long we will be here at Kindred: he’s making great progress but has a long way to go before he can go to final Rehab. He will become more and more independent each day.


A Word About Visiting...

I know many of you want to visit Henry now that we are out of acute care. Henry asks that you please be patient with him for another week or so as he needs to focus on rehab. His family was here for three days and he enjoyed seeing them and a few friends who have been with us since the first day of his hospitalization stop by, but visits exhaust him. When he is stronger in a week or so I’ll let folks know here on the weblog. Please text us or call before you visit as he often has appointments at Cedars and we will be away from the hospital with very little notice. Thank you for understanding.

Be fierce and thrive

—Ph/H

06 January 2020

01.06 Day 65

Today was a day full of milestones. Henry had his first hard PT session in the morning and exercised his legs, arms, and shoulders. It was a really good session with Scott his PT. Later in the day he had speech therapy and then Occupational Therapy which is centered on getting him strong enough to be independent. The big milestone is that he is now able to turn his body to the left and right and lay on either side in order to be cleaned and in preparation to transferring him to a wheelchair. He worked so hard he was exhausted after all the workouts and I know he will sleep well tonight. Tomorrow is another big day and Wednesday he begins to put weight on his right leg. I am so happy for him.

Today was also the last day of the visit from his mother, two of his sisters—Tiajuana and Tanya—and his nephew—Renze. He really enjoyed this visit especially seeing his mom. 

Henry is strong, fierce, and thriving...

—Ph/H
PS: To those who ask how I am doing I can say while I am tired and exhausted I am also well and happy. Yes, I’ve lost weight but I am eating well. Writing has kept me centered. I look forward to the day I can sit with my friends and drink wine and have a meal and laugh again...thank you for your love and support

04 January 2020

01.04 Waiting...and waiting...and waiting

Waiting

Waiting

Waiting

Waiting

Waiting

Waiting

Waiting

Waiting

Waiting

Waiting


Waiting

02 January 2020

01.02 Afternoon...

The entire third world has better wifi than this place.

A really good day again. Henry had a 20 minute session with the physical therapist who worked him out hard with leg lifts and arm exercises. He was exhausted after the workout. Then the occupational therapist came in to work on his fine motor skills with his hands (he brushed his teeth and is doing some exercises to strengthen his right arm). Finally the speech therapist ran us through some vocal exercises to strengthen his vocal cords. Henry is talking more and is beginning to sound much more like him self. I can’t wait until I hear him sing again...he has such a lovely voice.

These good days are great for both of us, our morale is very high after these sessions. He continues to improve in strength everyday. 

He’s looking forward to seeing his family tomorrow.

Day 62 

Be fierce and thrive...

—Ph/H

01 January 2020

01.01.2020 A Good Day ...

Today is the first writing day of the new year! The posts on this weblog are just a small part of the writing I do everyday following Henry’s life in the hospital. Since the day of his accident I’ve kept a detailed journal of not only his recovery but of my own journey through this experience. I hope to be done with this journal sometime this summer and be able to report to you all with pictures and text Henry’s recovery. It will take years for him to fully recover but I hope he will be able to return to some sense of normal in the not too distant future. Until then I continue to write for hours everyday and evening.

Today he met with three doctors one of whom is his pain specialist who seems to have conquered, with Methadone, the persistent pain Henry has felt. The he had a 30 minute session with Scot his Physical Therapist who exercised his legs and arms. I was surprised at how pain free the right leg seems now and really surprised to see him lift his left leg so far in the air without much strain. This is a big improvement as it was the left leg that was amputated below the knee.

He then met with the speech pathologist who went through a series of breathing exercises that were akin to a Mindful Meditation practice that we both perform. She indicated that she often teaches mindful breathing and meditation to people in the hospital and I mentioned the work of Jon Kabat-Zinn She knew his work. I’m happy she is a practitioner of his work. This will be an important part of both Henry’s and my recovery.

Friends also visited today as well as our nephew Quinton. So far it’s been a good start to the new year.

Please call us before you visit as Henry may be tired.

In 2020 be fierce and thrive...

—Philip HOPBELL