Full morning. They still haven’t completed the Cathedral. Hotel Duo exceptionally wonderful to Henry.
22 September 2022
2022.09.22
Full morning. They still haven’t completed the Cathedral. Hotel Duo exceptionally wonderful to Henry.
01 November 2020
November 1, 2020—A New Year One Year Later
This morning Henry and I agreed that from now on our year begins on November 1. We are so grateful for life! I couldn't imagine the pain and struggle my cherished husband would have to go through to thrive this year. Not only brought down by a horrible accident when a careless driver rushed the traffic light and caused horrible injuries to his body; then to suffer through the isolation from the pandemic when he needed the physical support of his friends. After being hospitalized for 12 weeks and then 8 weeks at California Rehab and another six months of home rehabilitation he is beginning to enjoy his independence once again. Henry has had the best care imaginable from doctors and physical therapy professionals but all the progress he's made is due to his courage and determination to "get his life back' as he never tires of telling me. In a few weeks he will begin outpatient physical therapy to begin to strengthen his legs and learn how to deal with whatever comes to him.
I learned this year to challenge doctors and nurses when I got vague or conflicting
information; I also learned to challenge the insurance companies who denied him coverage when he needed it the most and while his care was never delayed I had to act on his behalf to make sure he had continued care from his employee plan. Like all caregivers I had to learn a skill I didn't think I'd ever have to learn. People tell me Henry is lucky to have me but I remind them all that we took vows to support in sickness and in health until death...My job is to keep others out of his way so he can reclaim his life-potential.
Thank you to everyone for the kind words of support we received today. Your loving kindness helps us more than you can know. This year was one catastrophe after another but thanks to our mindfulness practice and our friends we got through this and will remain fierce and thrive...
—Ph/HOPBELL
03 September 2020
09-03—Back Again...
Here we are again: on Tuesday (09.01) Henry had surgery on his left hip and femur to remove the hardware and infected flesh. The surgeon also put a "nail" with antibiotic coated on it to kill off any remaining MRSA. This was a planned procedure but stressful and very painful for Henry. Today (09.03) he's still at Cedars and we think he will be there to Saturday. He really wants to come home but there are therapy and tests that have to be done before he can be safely released. Needless to say this is very stressful for the two of us and he appreciates the prayers and chants everybody gives him. All the staff on the 7th floor remember him and come in to say hello and wish him well—he's well liked and taken care of. The nurse in the recovery room after surgery remembered him and he remembered Halim as well. Halim was the nurse who helped me put Henry back in bed after he tried to get out of it after the amputation and when he was delirious. If you know Henry you know he bonds well with people.
I am taking care to eat this time around and get sleep and I thank everyone who annoy me by reminding me to take care of myself. It's taken me these ten months to get over the shock but I understand I need to be strong and healthy for him to fully recover.
Thank you everyone!
Be fierce and thrive...!
—Ph/HOPBELL
25 July 2020
Beware The Thin Ice...
All I know is that I look for the long moments of joy and happiness. Henry looks for independence from having to have me or anyone else do for him what he used to do for himself. Henry and I are solitary people who love to come together and enjoy the company of each other and talk about what happened in those times when we are apart. I know we are getting closer to that boundary but so far it's unknown territory. We have longer moments of joy and happiness than moments of despair and anger. Henry is spending much more time up and walking with the prosthetic and walker and he's learning to walk with a cane. Six weeks ago we measured his walks in feet and now we can measure a mile or more in a single walk.
13 June 2020
06.13—Mere anarchy is loosed upon the world...
06 June 2020
Full Catastrophe Living...
06.04
Woke at 4.
Slept better after MBSR practice for 45 minutes
Arrived and Henry was still asleep. He finally woke at 7:30 and reported that he slept through the night. He got up immediately and had cereal and coffee in the front room. Still in pain and none of the supplies have arrived and the provider and our doctor still haven’t connected to extend Henry’s wound care. It’s frustrating that I have to bird-dog these guys to get them to fill out an authorization. Dr C is good with getting the scripts requested. I spent all day writing emails, texting, and making phone calls speaking only to voice mail or answering services and no one responded. Such is my life.
• • • (Deleted text)
I bought another 10 cloth masks today. Henry and I now have about 40 pairs of cloth masks that I wash and disinfect when used. I keep the surplus for friends who visit who don’t wear a mask. I need large gloves or xl gloves but can’t find them anywhere. Every day I count back 14 days and look at who I interacted with, where I went, who came to the flat. I live like so many others in constant terror of contracting the virus. I don't believe either Henry or I could survive it.
• • •
06.05
Woke at 5
Long day.
It’s only 19:00 but I am very tired and will go to bed in 30 minutes. I spent all day on the telephone and on the hospital app trying to get wound dressing for Henry. Finally at the end of the day the Doctor got the fax and called the Health Care company so we can get a nurse again. It’s been six days since his wound has been dressed and I still don’t have any supplies. I’ve order a few boxes from Amazon at $50 for five pieces!
Henry had a speech class and then we met with the Social Worker for an hour.
Meanwhile the country is still in turmoil over the Police murdering black men. I really dislike the Police Culture.
Meditated for 45 minutes—
06.06
Woke at 3
D-Day
This is the 84th day of our quarantine or isolation. Though neither of us has been entirely isolated and I am in constant fear of contracting the virus. I wear a mask everywhere I go and I wash and disinfect my hands constantly. This morning the Uber driver told me he works at night and picks up young people who are coming home from late night house parties that they pay a cover charge to get in. The host pays the local cops to ignore the party. All our police are corrupt in one way or another. It’s the culture the police are trained in that bothers me and so many others. They are above the “law” and act as judge. Now that there are cameras everywhere it is harder for a police officer to get away with bad behavior. Unfortunately, our justice system favors authoritarianism.
• • •
I am reading Fang Fang’s Wuhan Diary and it’s a great insight into her experience in quarantine. Very personal and very interesting. She writes wonderfully about her family and neighbors. I'm very interested in how much time she spends on social media. I gave up on FaceBook a long time ago and I deleted my Twitter account when I retired from Disney. But I do miss the social interaction of bulletin boards and message boards. It seems Chinese people use the medium a lot though It may be my misinterpretation. Some people speculate that the virus will go away once the weather turns hot which it did last week and will do again later this week. I don’t know if the warm weather affect SARS or not.
The manager of the building I live in posted signs outlining how to use the pool during the pandemic. He likes to use words like “protocol” and “procedures”. The young tenets all think it’s amusing.
Henry is sleeping late today. I arrived before 7 and made coffee and it is now 8:30 and he is still in a light sleep. The birds are singing loudly but the sky is grey with clouds. It is supposed to be cool today but next week very hot. Luna is already up and barking at every person who dares to walk passed the building. Luna is our downstairs neighbor’s dog. She is a large mixed breed and very gentle though her bark is deep and gruff sounding. She loves Henry because he used to bake dog biscuits for her and gives her left over steak.
Looking back on the last seven days I have to say it’s been rough dealing with Henry’s pain—though he has to experience the pain directly it affects me as well in that I worry about him and there is little I can do to help him. When he has physical therapy with E or A he feels better and the activity gives him a morale boost. He’s walking a lot during the week: back and forth on the sidewalk up and down the block where we live. Last week he walked a third of a mile in one session.
Next week he has an in office appointment with Dr. Cushing and I am setting up his next appointment with Dr. Moon to see when the next surgery will take place.
I am waiting for UPS to arrive for a delivery of dressing supplies that were ordered over a week ago. The Health Care company claims the delay is due to the protests which sounds like BS to me. We have no dressing for Henry’s wound and I want to make sure we get these on hand so he can be comfortable.
It is 10:30AM. He’s had breakfast and so the day begins.
16:00
Sitting quietly reading and writing and listening to Jazz with Henry sitting close by reflecting. I went to the market to buy some dinner and I made a lasagna that we’ll have with broccoli. I also found some bottles of rubbing alcohol and I spent part of the early afternoon disinfecting the bathroom and the hard surfaces of the front room. The store manager told me, incidentally, that they can’t keep rubbing alcohol in stock for much longer than half a day before word gets out and someone cleans them out of every bottle. He put four cases aside to put out slowly so people like me could have some to buy. The store I go to requires the workers there to change masks every hour and disinfect the counters every time a customer uses it. They keep hand sanitizer nearby as well.
We waited eagerly for the post to arrive as I hoped the dressing supplies would arrive and when they did not I texted the case manager who wrote back that they had been delayed until Monday. I was so angry I cried. It’s unacceptable for this to happen since the company knew three weeks ago that the authorization was ending last week. Instead the case manager waited until last Wednesday to seek approval. It is painful for Henry to sit or lay on his back for long and the pain becomes all encompassing down his leg. It puts us both in terrible states of near despair but somehow we both manage to stay somewhat happy and even content in our quiet sitting. He meditates for 45 minutes to help with the peace.
• • •
He didn’t really want any dinner but he ate a big slice of
lasagna and a hotel spoonful of broccoli. He went directly to bed at 17:45 and I kissed him and left for home. Tomorrow is Sunday and Henry will attend his Church service by YouTube and take communion which the Church delivered to him a few weeks ago. He’s a believer and I’m not.
I’m going to have a glass of wine and read a bit of Fang Fang then go to bed at 19:30.
Be fierce and thrive...!
—Ph/HOPBELL
©2020 Ph/HOPBELL—Beware The Thin Ice
08 May 2020
05.08—More Waiting...
Henry did well. He pointed out to me that everybody in the IR knew us from November and remarked on how well he looked; they all knew us by name. Henry and I are very grateful to the staff of doctors, nurses, and technicians at Cedars-Sinai for saving his life and making it possible for him to continue his life. They are rightly proud to see him in such great condition and able to do so much more than when they last saw him in December.
Henry is back home and feels great. He's walking on the prosthetic daily for several hours in the morning and afternoon. He's also able to sit in his chair much longer than before. While his pain is still constant it is becoming manageable thanks to his constant use of his legs. On Monday he starts with a new rehabilitation team from Rehab Without Walls and they will work to get him independent and able to work again if he desires. What he desires most is to be independent and mobile and able to drive again. We are both happy our insurance company approved this intensive rehab. CIGNA has been great in quickly approving and paying providers particularly compared to AmeriBen which has been, in my opinion, negligent and uncooperative.
We are both well and keeping ourselves isolated from general public except for when I have to go out to market. We hope you all are also well and keeping safe.
Be fierce and thrive...
—Ph/HOPBELL
01 May 2020
05.01—6 Months!
Yesterday he walked unaided down his stairs and to the landing at the entrance and back up. He was excited as he stood on his balcony looking out for the first time in weeks. He told me he felt "normal" again. Everyday is a new day and another day of progress for him. Henry told us he wants to walk alone by the end of summer and we all believe he will be able to meet that goal.
We both took the tests for Covid-19 today at the office and we are awaiting the results. We all feel well and strong and we are keeping separate from strangers and our many friends. But like all of you we long for our friends' presence and touch. Until then virtual kisses and hugs have to do.
Be fierce and thrive...!
—Ph/HOPBELL
03 March 2020
03.03—We Are Fierce and Thriving
I saw Henry yesterday and he looks great. He was pretty sore from his workout but got through the afternoon workout like he always does. He said this morning that he slept well and without pain.
He's using the prosthetic leg as part of the therapy and is beginning to stand and even use a step. His right leg still needs a lot of work to strengthen the muscles but he's improving with each day: he's gaining strength in his left arm and the bending of his left knee is greatly improved. I'm so proud of him.
My health is improving. I see the attending physician later this week and I am sure everything will be fine. I want to get back to seeing Henry on a daily basis as soon as I can but I tire easily. I am moving back to my own flat on Saturday and I am very grateful to Karen Roth, in whose home I have been staying off and on since November, for letting me use the villa as my camp ground. I don't know if Henry will be ready to return home on 12 March but when he is ready his home will be ready to receive him.
Be fierce and thrive...
—Ph/H
19 February 2020
02.19—We've Moved!
CRI is perhaps the best institution of its kind in the US and I am happy we got to jump ahead of the waiting list. Henry will miss his PT and OT team at Kindred; they did a remarkable job getting him motivated to succeed and we are both grateful to them all. In a future post I'll name them all and give other shout outs to the kind folks who took care of Henry and put up with my badgering.
This is the next chapter...be fierce and thrive, Henry!!
—Philip
15 February 2020
02.15—Real Progress!
It's too soon to know what the next steps will be but I imagine once the antibiotic protocol is complete and Henry can withstand the physical therapy we will be released to the acute rehab facility (we are hoping it will be California Rehab Institute in Century City). This is great news!!
It's the weekend and Henry is resting and taking visitors while I do the laundry and rest for the week to come. I am grateful for the many friends who expressed concern and kind, loving thoughts for Henry and me.
Be fierce and thrive...!
—Ph/H
13 February 2020
02.13—Update
We often spend the afternoons watching Netflix or Amazon Prime to relax and get our minds off everything that is happening. After 30 years I enjoy just sitting with him quietly, watching a movie and just being together.
Henry had a very hard workout on Wednesday. He was able to take six hop-steps forward using a walker. He didn't get a lot of sleep the night before as the hospital is very noisy, but he once again rose above his pain and exhaustion.
Today is Thursday and I expect PT will give him more challenges. We met with the sales rep for a prosthetic company and he will make a brace for Henry's right foot, while it is getting stronger he needs support to help him walk on with that leg.
Be fierce and thrive...
—Philip
12 February 2020
02.12—Positive Update
Naturally, I am very happy with his success and I can't wait to see what happens each day. Thank you again for your constant empowering thoughts and prayers for him. When I look back on the last 103 days and the terror and pain we both experienced, I don't know how we would have gotten through it all without your loving kindness toward the two of us.
Be fierce and thrive...
—Ph/H
PLEASE NOTE:
I am aware some of you are unable to post comments to this weblog and I apologize; I will try to fix that user interface. When you write your post don't forget to click on the "Publish" button on the lower left of the comment box. If you are reading this on a computer rather than your phone; click on the title of the post and go to the post page at the bottom of the post you will see the comment box. I know this is poor design...I am sorry!
06 February 2020
02.06 Latest News—Day 95
This is potentially serious. Henry will be transported sometime soon back to Cedars for the orthopedic surgeon to look at his hip and perform a CT-scan to see if the infection is attached to the hardware in his hip and thigh. If it is then he will need major surgery to remove the hardware. There is a possibility that the infection is superficial and can be treated with antibiotics. If there is surgery it could add many weeks to his recovery. He is progressing with physical therapy rapidly and this would put a stop to that. Needless-to-say we are both anxious but hopeful that the infection is not related to the metal implants. Our attitude during this time is positive. Of course, your support and love carry both of us and we welcome your notes, videos, and comments along with your prayers, best thoughts, and chants.
He will remain at Kindred until we have a plan from the orthopedic surgeon at Cedars-Sinai.
Be fierce and thrive!
—Philip
31 January 2020
01.31—Day 90
29 January 2020
01.29 Short Update—Day 88
22 January 2020
01.22 Afternoon Update
He sat in the chair during speech therapy and practiced various sounds and vowels for 30 minutes. He is sounding better and better but I think this is going to change his voice permanently. He always had a raspy voice but now it will have more rasp and vocal breaks. But he still sings to himself and me though and I love the sound of his voice...
He is exhausted after these two hours and his legs are both on fire with muscle pain. We are determined to move to Acute Rehab in ten day or sooner so he knows there is a lot of work yet to do.
This is day 81
—Ph/H
20 January 2020
01.20 Day 79 Brief Update
No one can relate to the pain Henry is going through; all I know is whatever he is going through he has already gone through worse. That he survived the accident with all his injuries is amazing and a tribute to the doctors’ skill and his will to live.
Be fierce and thrive...
—Ph/H
16 January 2020
01.16 Day 75
To you who have written me about a book: yes I am writing a book about our journey. I started that journal on the day of the accident; I started updating my weblog with his status on 2 November. These are two different points of view and compliment each other each adding context to the other. As you can imagine both the weblog and the book are far from complete.
Today the therapists showed up early and had him dress in pajama pants and a sweat shirt (from The Beverly Hills Hotel). Then they showed him how to slide himself into the wheelchair. He then wheeled himself into the gym again where his PT helped him stand using the parallel bars. He was able to lift himself but needed help standing. He was able to stand for about three minutes before having to sit again in the chair. Once he gathered himself again he was able to stand twice more with help from the PTs. After this exercise Henry sat for about 30 minutes in the wheelchair while we visited with the staff. I was so proud of him.
He’s beginning to become more independent and do things for himself again. This is very rewarding for both of us as I become more of an onlooker and his cheerleader.
Be fierce and thrive!
—Philip HOPBELL
15 January 2020
01.15 Henry’s Progress—Day 74
Today after stretching out his leg muscles and shoulder he was able to roll over to the right and left side without help. Eventually he was able to sit up on the bed and dangle his legs over the edge. The therapist then transferred him to the wheelchair and allowed Henry to wheel himself down the hall and out the front door so he could sit in the sun and coolish air. While this seems a simple thing it is in fact a major accomplishment for someone who has been inside and flat on his back for 74 days and nights. After getting outside the PT stretched his leg again and then let him sit quietly outside where he and I spent some time talking and enjoying our time.
It is impossible to describe or even to imagine the pain, both physical and emotional, he is going through each hour everyday; the drugs don’t completely abate the sensation but he rarely displays despair. I am so proud of him.
Be fierce and thrive...
—Ph/H












