26 February 2020

02.26—Updates

Henry's time at California Rehabilitation Institute is very positive; everything from the atmosphere to the great attentive nursing staff and the strong presence of the therapy team all add to his recovery. A good sign of this is his proposed release date is 12 March if he is ready. This means home and we are very happy!!


My room at Cedars
On another note: I had an emergency appendectomy on Saturday and I am now recovering at my friend Karen's house in Beverly Hills. I am grateful as always for the many friends who supported me while I was in the hospital: Pirco and Jean; Jennifer and David; and Cliff and Vicki who were the faces I saw when I woke up. I was operated on by Dr. Singer who was one of the attending doctors who saved Henry. He remembered me and assured me he would take good care of me.

I haven't been able to see Henry for a few days and it's the worst part of this. We both depend on each other for everything. We talk daily and text often. I hope to be able to rally and see him tomorrow. 

More another day...

Be fierce and thrive!
—Philip

21 February 2020

02.21—At CRI

I spent the last three days in amazement at Henry's progress. He is able to transfer himself from and to his bed and to the commode. Yesterday he took a shower for the first time in four months. He is growing stronger quickly with each day. I noticed today how strong the left arm is becoming and his tolerance for pain is becoming stronger as well.

Yesterday he was fitted for a prosthetic leg and measured for a brace for his right foot; both will be ready for him within a week. The reason CRI is accelerating therapy is to make up for the lost two days this week before he was transferred and he will have physical therapy (and maybe occupational therapy) both days over the weekend. The OT focuses on the day to day tasks like showering and going to the toilet while the PT focuses on strength and includes things like the mechanics of movement and yoga. Everything is to prepare him for going home and being self sufficient. 

I am seeing so much progress that it is hard to describe in a few words. He's even gaining a little weight back and I can see that old spark in his eyes when he is delighted. I know he's tired of seeing me tear-up every time I see his progress but I am seeing the man I love fight back and gain his independence.

Be fierce and thrive...!

—Philip

19 February 2020

02.19—We've Moved!

Yesterday morning our case worker at Kindred informed us that a bed had opened at California Rehabilitation Institute and that we had to move ASAP. By 3:30 that afternoon we were at CRI in room 419 and getting settled in. This is major progress for Henry's rehabilitation and I am eager for him to start today.

CRI is perhaps the best institution of its kind in the US and I am happy we got to jump ahead of the waiting list. Henry will miss his PT and OT team at Kindred; they did a remarkable job getting him motivated to succeed and we are both grateful to them all. In a future post I'll name them all and give other shout outs to the kind folks who took care of Henry and put up with my badgering.

This is the next chapter...be fierce and thrive, Henry!!

—Philip

15 February 2020

02.15—Real Progress!

On Friday Henry and I traveled by ambulance to Cedars-Sinai Orthopedic Center for an appointment with Dr. Moon, the original surgeon who took care of his broken body. After x-rays and examination of the blood work the doctor told us the hip infection was "superficial" and not a problem with his full recovery. To say we were relieved would be an understatement and we went back to Kindred Hospital very happy indeed!

It's too soon to know what the next steps will be but I imagine once the antibiotic protocol is complete and Henry can withstand the physical therapy we will be released to the acute rehab facility (we are hoping it will be California Rehab Institute in Century City). This is great news!!

It's the weekend and Henry is resting and taking visitors while I do the laundry and rest for the week to come. I am grateful for the many friends who expressed concern and kind, loving thoughts for Henry and me.

Be fierce and thrive...!

—Ph/H

13 February 2020

02.13—Update

On Friday we will transfer to Cedars-Sinai for a consultation with his orthopedic surgeon, Dr. Moon, who will examine the infection in his left hip. We don't know how long we will be at Cedars but we are hoping for a positive outcome that would find that the infection is superficial and not connected to the metal in the leg and hip. We are anxious but hopeful.


We often spend the afternoons watching Netflix or Amazon Prime to relax and get our minds off everything that is happening. After 30 years I enjoy just sitting with him quietly, watching a movie and just being together.

Henry had a very hard workout on Wednesday. He was able to take six hop-steps forward using a walker. He didn't get a lot of sleep the night before as the hospital is very noisy, but he once again rose above his pain and exhaustion.

Today is Thursday and I expect PT will give him more challenges. We met with the sales rep for a prosthetic company and he will make a brace for Henry's right foot, while it is getting stronger he needs support to help him walk on with that leg.



Be fierce and thrive...

—Philip

12 February 2020

02.12—Positive Update

Very positive progress for Henry over the last two days. On Monday he was able to hold himself upright with the parallel bars and stand on his right leg. Tuesday he surprised me by sitting up on the edge of the bed and using a walker was able to lift himself without aid and stand for a period of time with some weight on his right leg but supporting himself with his arms. This is a major accomplishment for him and I was in tears as he stood there and could look be in the eyes. It took all his strength to do this six times standing for about a minute each time. There is considerable pain in his ankle and knee but it is tolerable for him for a short time. His physical therapy team encourages him and he responds to them easily even when he doesn't feel like doing anything.

Naturally, I am very happy with his success and I can't wait to see what happens each day. Thank you again for your constant empowering thoughts and prayers for him. When I look back on the last 103 days and the terror and pain we both experienced, I don't know how we would have gotten through it all without your loving kindness toward the two of us. 

Be fierce and thrive...
—Ph/H

PLEASE NOTE:
I am aware some of you are unable to post comments to this weblog and I apologize; I will try to fix that user interface. When you write your post don't forget to click on the "Publish" button on the lower left of the comment box. If you are reading this on a computer rather than your phone; click on the title of the post and go to the post page at the bottom of the post you will see the comment box. I know this is poor design...I am sorry! 

10 February 2020

02.10—A Good Weekend

It was a great weekend: Henry had a visitor, Brooke, from the Beverly Hills Hotel on Saturday and on Sunday early morning our good friend, Pirco, visited on his way back from a morning walk on the beach. Then in the afternoon, Eva brought him a meal of ham and cabbage and we got a cherished visit from Térence who came in from Paris on his way to a conference in Las Vegas to see Henry. Térence and Henry are like brothers and I could tell the visit lifted his spirit and made him so happy. For me it was a great comfort to see my friend of 20 years who brought us much love from our family in France. 

Visits from friends over the weekend fuels Henry for the week to come and give him the energy to work hard during the week. This coming week will be one for hard physical therapy and healing. On Friday we go back to Cedars-Sinai for a meeting with the orthopedic surgeon.

Be fierce and thrive...

—Ph/H

08 February 2020

02.08—Update

Henry has an appointment with his orthopedic surgeon, Dr. Moon, on 14 February at Cedars-Sinai. Dr. Moon will decide at that time what the course of action will be to clear the infection. He may be admitted to Cedars at that time or sent back to Kindred for treatment for the infection.

Henry continues physical and occupational therapy while we wait for the results.

Be fierce...and thrive

—Ph/H

06 February 2020

02.06 Latest News—Day 95

I've been absent from the weblog for a reason: Henry and I were waiting for more information to share with our friends and family. Over the last ten days Henry developed an infection on his left hip; on Sunday the site burst and drained a lot of infected debris; once drained, the wound-care doctor looked at it and decided to take cultures and start Henry on a regimen of antibiotics. 

This is potentially serious. Henry will be transported sometime soon back to Cedars for the orthopedic surgeon to look at his hip and perform a CT-scan to see if the infection is attached to the hardware in his hip and thigh. If it is then he will need major surgery to remove the hardware. There is a possibility that the infection is superficial and can be treated with antibiotics. If there is surgery it could add many weeks to his recovery. He is progressing with physical therapy rapidly and this would put a stop to that. Needless-to-say we are both anxious but hopeful that the infection is not related to the metal implants. Our attitude during this time is positive. Of course, your support and love carry both of us and we welcome your notes, videos, and comments along with your prayers, best thoughts, and chants.

He will remain at Kindred until we have a plan from the orthopedic surgeon at Cedars-Sinai.

Be fierce and thrive!

—Philip